Advertisement

In the name of a sister

Family works to donate a visual therapy center for residents at a state-run facility in Costa Mesa.

November 23, 2009|By Mona Shadia

Ronda lived with a genetic disorder that prevented her from expressing herself.

But through her years of inability to live a normal life, something simple made her happy: gazing at a television set in her room that showed images of natural scenery, like ocean waves or a sunset.

Ronda, who died at age 42 after battling tuberous sclerosis complex, a disorder that left her developmentally disabled and unable to care for herself, also enjoyed looking at family photos.

Advertisement

“It gave her a lot of peace during the last months of her life,” said Julia Cohen, Ronda’s sister.

Now, after seeing what it did for Ronda, Julia Cohen, 29, and their mother, Adrianne Cohen, have come together to help individuals with developmental diseases experience some of those simple pleasures in life themselves through visual therapy.

The Cohens are working to recreate that experience for residents at the Fairview Developmental Center in Costa Mesa, where Ronda spent most of her life.

Before Ronda died in August 2007, the Cohens began working with the center to establish Ronda’s Dream Center, a visual therapy center in her honor, which they hope will give residents there a better quality of life.

Fairview center welcomed the idea and donated a trailer on the site to be transformed into a visual therapy center, Julia Cohen said.

Although the project was approved by the Fairview center before Ronda died, it took the Cohens a year after her death to start actively raising funds.

For the center to function, the Cohens need to raise $175,000. So far, they’ve managed to raise $25,000 and continue to work through the Orange County Community Foundation for grants and donation opportunities, Julia Cohen said.

The dream center will open in two phases: The first would provide a room for visuals to be projected on the four walls, and the second would provide an interactive projector that would rely on users’ movements to provide images.

“We wish she was here to enjoy it, but we’re moving forward with the project for the benefit of all the people at Fairview,” Julia Cohen said.

Julia Cohen, who has dedicated her life to helping others through working and volunteering with the Leukemia & Lymphoma Society and other nonprofit organizations, said the dream center is a gift to the organization that cared for her sister for many years.

Daily Pilot Articles
|
|
|