A recurring topic in this column is the status of CureDuchenne, a group started by a local mom, Debra Miller, as a way to find a cure for the particular strain of muscular dystrophy with which her son has been diagnosed.
I reported in January about a breakthrough in this disease by the Netherlands drug company Prosensa.
Prosensa’s breakthrough treatment for Duchenne muscular dystrophy was largely made possible through a $1.3-million grant from Miller’s nonprofit group.
I continue to keep tabs on her efforts largely because I admire the heck out of her.
As a father of three, including a young son (Duchenne afflicts only boys), I cheer for Miller every day.
I want her to win this battle and save her son and others from this dreaded disease that basically ravages the muscles of young boys as they enter their teenage years.